Monday, March 16, 2015

Meet Nadine - our Utah Kids Events Calendar Coordinator!

Hello! My name is Nadine Stoliby Braxton. I am the events coordinator for the Utah Kids Foundation. My job is to keep the events calendar updated. I receive the emails with the events for the Utah Kids Foundation and post them to the events calendar on the website. I also post them in the facebook group page.
 I was a military child, born in Indiana but moved around a lot. I spent a lot of my adult life in Mississippi and Texas. My grandfather was a full blood Choctaw from the Choctaw Nation of Oklahoma. My daughter Jessi, grandson Dakota and I are tribal members of the Choctaw Nation of Oklahoma. They both were born in Mississippi and moved in with me when I lived in Texas when Dakota was 6 months old. It's been a whirlwind since then to say the least!
 We moved to Utah when I lost my job in Texas and got rehired by the same company in Utah. I have been in the printing business for over 30 years. My daughter works not far from me at Discover. Dakota is 8 and in the third grade at Holbrook Elementary in Bountiful, where we live. My mother came up from Arizona and moved in with us, so we have 4 generations in our household.
 Dakota is the man of my life! He amazes me, he is my number one hero. He was diagnosed with high functioning Autism, Oppositional Defiance Disorder and Attention Deficit Hyperactivity Disorder at the age of five, after 2 years of not knowing what was wrong with him and fighting for months trying to find out. In 2013 he also started having seizures at night and just recently was diagnosed with some anxiety issues. I am his biggest advocate. I do not mind going up to his school and having large conversations about his IEP and whether or not it is being followed 100%, which most of the time it isn't. Everyone at the school knows who I am and who belongs to me.
 Dakota is probably what I would call my main hobby, he takes up most of my time, but I love rodeo and pow wows! Weird mix, I know, but that's just me. I love the western world, and my Indian blood runs wild at pow wows. My Mom is from Louisiana and we love Cajun food, but I got to have some Indian Fry bread whenever I can! I love the mountains, small towns and road trips. I can ride around all day just looking at the countryside, beautiful scenery and everything a small town has to offer. Dakota loves to swim and Great Wolf Lodge is our favorite place to go, so we save up every year to go.
 My favorite quote is "Don't let small minds convince you that your Dreams are too Big".
However, there is a Native American Prayer that I cannot leave out.
"May the Warm Winds of Heaven
Blow softly upon your house.
May the Great Spirit
Bless all who enter there.
May your Mocassins
Make happy tracks
in many snows,
and may the Rainbow
Always touch your shoulder."

 The hardest thing I've had to do as a Special Needs Grandparent is to watch my grandson, Dakota, try so  hard to fit in. He has such a hard time at school. Sometimes I feel like we are making him suffer by making him go to school everyday. He has very few friends, which breaks my heart. I just want to be with him all day to protect him from getting his feelings hurt. He is so smart, so bright and so fun to be with when he is in the right environment. When he was in kindergarten, the principal refused to have him tested. He wanted to go to school so bad, but his days were so terrible that I hated dropping him off everyday. I would cry when I dropped him off because he spent so much time in detention. And I knew what a great kid he really was!
 I just pray that some day he will understand how to navigate in this world. It's so heartbreaking to see any child with health issues.

10 Little known facts about me.
1. Since a very early age I have always wanted to be a Cowboy!
2. Once I rode in the opening ceremony at the Dixie Nationals Rodeo.
3. I once owned a horse that kicked me in the chin and busted it open, and once he stopped so suddenly that he threw me and I landed upside down hanging on a barbed wire fence.
4. I could eat Mudbugs (boiled crawfish) until I get sick!
5. I can cook Gumbo!
6. I would rather live in the country!
7. I love country music.
8. My greatest accomplishment is helping to raise a sweet, loving, awesome boy!
9. I'm super proud of Dakota just for surviving everyday.
10. I am honored to be a part of the Utah Kids Foundation.

I am so thankful to all the advocates that have tried so hard to help Dakota. He has an awesome 3rd grade teacher, I couldn't ask for better, and our resource teacher is so attentive it's unbelievable. We have had a lot of help from Davis Behavioral Health, our pediatrician is extra awesome, and so is our OT. I'm very thankful that this awesome little boy has came into our lives. He has taught me many things in life. I'm also very thankful that I joined the Utah Kids foundation. I was pointed to the facebook page by friend.
Hello. My name is Jessica. I am so thankful for my mom Nadine Braxton. She is the most dependable person I know. Nadine always takes my son Dakota to his therapy and dr appointments and plans awesome vacations that the whole family can enjoy. She also stands her ground with Dakota's school to get him the assistance he needs. She is not just a great mom but also an excellent Gammy!









Monday, March 9, 2015

Meet Brandee Garvoille - our Autism and Insurance Guru

Hello, my name is Brandee Garvoille, and I am the Autism and Insurance Consultant for the Utah Kids Foundation!  I was born and raised in West Valley City, and the furthest I would move away from home was 11.3 miles to West Jordan!  I’m an only child, and a total Mama’s Girl (and my kids are pretty much Grandma Trace’s whole world)! J
At 19, I started working for SelectHealth (which was then IHC Health Plans), the six years that I was there, I worked as a claims processor/member services, enrollment processor, and customer service coordinator for both small group, and individual sales.  While working there, I also became a certified medical coder.  I learned all the ins and outs of the insurance carrier side of things, and then was recruited to work for an agent at his agency, The Insurance Exchange.  In 2006 I became a licensed Health/Life Insurance Producer.  I am now the Vice President of Operations, and run the entire agency; also, I sell, and have my own book of business.  The knowledge that I gained while working at SelectHealth has become invaluable in my role as an insurance agent, a special needs parent, and as a member of the Utah Kids Board.

6 months after I started working for IHC, I married the love of my life, and my best friend, Andrew Garvoille.  We wanted to start a family, but the babies never came.  After several miscarriages, we decided to become licensed foster parents.  In February of 2003, 3 year old Carter came to live with us; he has been diagnosed with Asperger’s, Fetal Alcohol Syndrome, ADHD, PTSD, and Reactive Attachment Disorder.  In May of 2004, we were able to adopt him!  He is 15 years old now, and is SUPER smart (almost too smart for his own good)!  He loves video games, LEGOS, and anything he can take apart, and put back together. 


In September of 2004, at just 4 weeks old, KayCee came to live with us (we were able to adopt her in July of 2005), at that time she was diagnosed with Failure to Thrive, and only weighed 7 pounds; she is now a rambunctious 10 year old chatter box, that never stops moving!  She has been diagnosed with Autism Spectrum Disorder, Fetal Alcohol Syndrome, and ADHD.  She loves to play with her friends, anything Sophia the First, or Curious George, and tormenting her big brother!



My kids are my biggest test, and my biggest reward!  I don’t know why my babies had to take the road they did to come to us, but they were definitely meant to be part of our family!  My family is complete, and I wouldn’t trade any of it, even the hard days, for anything in the world!
The hardest thing I've had to do as a Special Needs Parent, is work full-time; run an entire insurance agency by myself, and juggle appointments, therapies, IEP meetings, homework, emergencies, etc. The hardest days of all are when one of my kiddos wakes up and says, "Mommy, do you HAVE to go to work today?! I wish you could just stay home with me!" Those are the days I don't wear any makeup, and I bawl the entire way to work!! The other thing that breaks my heart is watching my kids struggle with their peers; not being invited to birthday parties (for some reason, this breaks my daughter's heart more than anything!), the bullying, watching my son play himself, and tell me he doesn't have any friends. I wish everyone could see how amazing my kids are! Our life may be hard, but I wouldn't trade it for anything! Just this past weekend, my mom took Carter, KayCee, and I to Disney on Ice; when I saw the look of pure joy and amazement, on the faces of my 15 year-old son, and almost 11 year-old daughter, I leaned over to my mom and said, "I'm grateful for their special needs. They are so innocent, and find so much joy in the world; it keeps them young!"
I’m so excited to be on the Utah Kids board and work with such amazing people, and be support for all of the amazing special needs families in Utah! Feel free to contact me, if you ever need help with anything!!
My favorite quote is, “When God leads you to the edge of a cliff, trust him fully. Only two things can happen; either he will catch you when you fall, or he will teach you how to fly.”


10 little known/interesting facts about me..

1) I won a beautiful baby contest!
2) As a Senior in high school, I was awarded, "Sterling Scholar of Family and Consumer Science".
3)  I'm an only child. My father was killed in an industrial accident when my mom was eight-and-a-half months pregnant with me. She remarried when I was 5, and my step-dad legally adopted me when I was 8; they were never able to have any more children.
4) Both of my children were adopted from the Foster care system. My son's biological grandfather is a very infamous man, and died in prison. I still wonder if I should ever tell him the whole truth!
5) My aunt, and I, married brothers; they've since divorced, but for a few years, my aunt was, also, my sister-in-law, and my husband's brother was his uncle; their kids are my cousins, and my nieces and nephews.
6) I met my husband when I went on a blind-date with my aunt and the brother's best friend. (The best friend ended up marrying Drew's sister...LOL...they also divorced, so out of the three marriages that happened in one year of each other, we are the only ones who've made it! Our 15th wedding anniversary is on April 21st!!)
7) I am a die-hard University of Utah fan!! My daughter is 1/4 Ute Indian, and was a U fan, until her teacher, and my mom, brainwashed her into becoming a BYU fan!!
8)  I LOVE NASCAR!! My dad used to race, for his first Father's Day, we gave him a barrel of racing fuel! He used to work for a company that built engine parts for NASCAR; I've met several drivers, and been in their million dollar motor homes!! I love Dale Earnhardt, Jr., and my husband even looks like him!!
9) My dad has a rare form of Muscular Dystrophy called Pompe Disease, there are only 7 people in Utah that have it! At Rare Disease Day, I had the pleasure of meeting 4 of those amazing people! On March 21st, my family is walking in the MDA walk, and our team (Parading for Pompe) has already raised almost $2,000!!
10)  Syndi Knowlton and I could seriously be long lost sisters, we have SO MUCH in common, including our own medical issues! Being apart of Utah Kids has been the most amazing and rewarding experience for me!! I can't wait to head up the committee for the Empty Stocking Fund this year!!















Sunday, March 1, 2015

This handsome boy is Konner - our March Kid of the Month!



Konner is a 5 year old little boy who is full of spark and life.  He doesn't let anything stop him or get in his way.  He doesn't find his disability to be a blockage in the road but a journey of life.  He has gone through 4 years of being poked and prodded by doctors to get a diagnosis.  May 1, 2014, we  found out Konner has a rare condition called Hereditary Spastic Paraplegia SPG4 mutation.  It is the most common form of HSP but Konner's is considered complicated due to him having partial complex seizures, sensory processing disorder which might also be related to his condition, and possibly Aspberger's.  This condition is usually found in adults and is not commonly found in children or children have been misdiagnosed with Cerebral Palsy that do have this condition.  He has been in a wheelchair for 2 1/2 years and just received his first powerchair in January due to his condition progressing.  We moved here to Utah 2 1/2 years ago from Wyoming in order to be closer to the doctors at Primary's as we were traveling here so much.  Since moving here, our appointments have been spread out and now that we have a diagnosis, we don't need to see as many doctors.  They aren't certain how to help him with this progress.   We will be seeing an HSP specialist in October at the Scottish Rite of Dallas because of how complex Konner is , a lot of doctors have referred to this doctor for answers and to enroll Konner in a study.

His favorite activities are the movies and horseback riding in Layton.  He received a Make A Wish trip in January to go to Disney World to meet Mickey.  His dream job would be a fireman like his second cousin, who is his hero!  This journey we have been on the last 5 years has been a trialing journey but one of the best as well.  Thorough Konner we have learned patience and understanding.  We have also grown closer to God to help us through this journey and bring us the answers to help Konner .  For more information on Konner's journey and store, follow him on Facebook.

Meet Nikki Nelson -Southern Utah Parent Advocate

Hi my name is Nikki Nelson. I currently serve on the Utah Kids board as the Southern Utah Parent Advocate. I have been a resident of Washington County since 1990.  I have been married to my amazing husband, Andrew, for almost 17 years; we have 3 children, all boys. Our oldest will be 15 years old this month and is in the 9th grade.  We also have identical twin boys age 7 and in the first grade.
I am currently a stay at home mom, with a small professional photography business on the side. I have a Bachelors of Science in Business Administration.  I worked in the HR field for 7 years before deciding to stay at home.  During college I served on the Student Executive Council as the Organizations President working with the Clubs on campus organizing and helping clubs complete service projects throughout the community. I also served as a VISTA (Volunteers In Service To America) Volunteer for Dixie State College, once again over service on campus, organizing groups as well as individual service projects for students within the community. This also included teaching a service class once a week that a student could earn one credit from.     
The twins were born 11 weeks before they were due.  They suffered from twin to twin transfusion causing them to come early.  This caused great stress to them being born at only 29 weeks.  One twin had mild problems and has come around to being “typical” today.  The other twin suffered more serious trauma at birth and was also the donor in the twin to twin transfusion.  At about 12 months he was diagnosed with Cerebral Palsy (CP).  He currently uses a wheel chair for all transportation however he does love to play on the ground with his cars.  Slowly he is learning to talk and communicate, but he does understand very well.  He eats regular food and he loves to eat, he LOVES to laugh, play with his brothers, listen to music, go for car rides, shop, ride the bus, swim, and just have a great time.  
Having a child with special needs has introduced me to a whole new world.  It has given me great opportunities to meet amazing people.  It has also given me some of my greatest blessings in life.  It is the hardest thing I have ever done, but truly the most rewarding!  
I know how important a support group is to me.  Sometimes there is a very “alone” feeling being a parent of a special needs child, but a support system is crucial to help dissipate that feeling.  Somehow the word needs to get out there that support systems do exist and that there are so many resources available.  I love volunteering and serving the community. I am so honored to get to be a part of Utah Kids and have the friendships that I have gained from it.

My favorite quote is:
Do not go where the path may lead, go instead where there is no path and leave a trail.

Or this one

God doesn't give children with disabilities to strong people: He gives them to ordinary, everyday people, then He helps the parents to grow stronger through the journey. Raising a child with special needs doesn't TAKE a special family, it MAKES a special family. -- Author Unknown

The hardest thing I’ve had to do as a Special Needs Parent is watching my 1 week old baby be taken away in the Life Flight incubator to go to Primary Children’s for life saving bowel surgery. Then again at age 4 months, same thing. Or it could possibly be the skull surgery we chose to do knowing it was risky, but that he needed it to fix the shape of his head for growth in the future. Maybe it’s holding him as he cries while they put him to sleep so he can have injections in his legs so he isn’t so stiff. Then again this last summer when he had to have a right hip reconstruction, femur reduction, and adductor release surgery and then spent 6 weeks in a body cast was all pretty hard too. I guess the theme here for me is that surgeries SUCK and it’s very hard for me to send my little buddy  to be put to sleep so when he wakes up he doesn’t know what’s going on and no matter how hard I try to explain it to him before hand he just doesn’t understand. Yes, these things are hard, but I’m not gonna lie, being a Special Needs parent is also very rewarding  and truly has taught me the greatest gift of all, Unconditional Love, because even though surgeries are hard he still LOVES me when it’s all over.


10 Little Known or Interesting Facts About Me

  1. In December 2013 my husband won a Facebook contest to have Lasik surgery for himself or a friend, he gave it to me. Best gift ever!
  2. I have a sunflower tattoo on my right leg.
  3. I’ve had melanoma cancer on my right arm and had to have a chunk of my arm taken out as well as lymph nodes in my arm pit. Because of that surgery I can’t feel anything on my right arm from just below the elbow all the way to my fingertips.
  4. I met my husband on a blind date that we both had cancelled several times before finally caving in and going on it.
  5. I’m terrified of Heights. I shake and start to hyperventilate when I’m put in that situation.
  6. Every year I set a goal to read 10,000 pages in one year. I did it once in 2010, but barely, 27 books for a total of 10,015 pages.
  7. I took a class in college twice because I didn’t get an A. I got a B+ and that wasn’t good enough.
  8. If it’s from the sea I DO NOT eat it. I also HATE olives, not that they have anything to do with each other, but I dislike both a lot. But I do LOVE Diet Coke and can be found drinking one from sun up to sun down.
  9. My car caught on fire one time when I was driving home from Salt Lake with a friend.
  10. When I was younger I wanted to move to New York and work in a high rise.








Monday, February 23, 2015

Meet Melissa! Super Mom and Northern Utah Parent Advocate



This week it is my turn to be the spotlight board member. I am married to Scott Christensen and we have been married for almost 14 years. We have four kids. Trevor is almost 13 (Autism, ADHD, Oppositional Defiance Disorder, and Intellectual Disability). Jordan is turning 11 in a week (ADHD, Anxiety), Josh is 7 (Microcephaly, Pseudo Obstruction, Dysautonomia, Dysphagia, Dyspraxia, Speech Apraxia, FTT, and a few other diagnosis). Our youngest is Kaitlyn and she is 4. She was a former 33 weeker, who is doing fine with no lingering issues. My position on the Utah Kids Foundation Board is a Northern Utah Parent Advocate as well as the secretary. My hobbies include reading, organizing and spending time with my family….simply because that is all I have time to squeeze inJ One of my favorite quotes I love is “Some Superheros don’t wear capes”. My kids deal with a lot and are an inspiration to me.


The Hardest thing I have ever had to do as a special needs parent is a toss up for me. So I am going to talk about both.
First thing is just being there for procedures and hospital stays with Josh. I love that at Primary’s they are so great to let parents be there for most everything. The downfall of that is having to hold him down for yet another painful thing, or something he is scared to do. It’s emotionally overwhelming to have to try to explain to Josh that he needs this stuff to get feeling better, when I know he really has no comprehension of what is going on. His record for IV’s was 32 in a 5 day period. He is amazing at adapting and I think a lot of times it’s harder on me than him. We have been to the OR probably around 40 times now and he is a trooper. He knows where we give a kiss goodbye and tells me bye without any tears anymore. Wish it was that easy for me. The second hardest thing I deal with is simply the division of my time. Josh is my most time consuming on a daily basis. He is on a lot of meds, has a GJ tube and is TPN dependent so has a central line too. Just doing daily cares is hard and having other kids who feel like I don’t pay attention to them is hard.



10 interesting or little known facts about me:

      *I lived in Arizona and was a cheerleader for 2 years.
     * I love to organize and label things
     *I am addicted to Mountain Dew…by default and lack of sleep.
     *My favorite color is pink.
     *I used to work for Delta Airlines and because of that was able to go back east      and visit family, as well as go to Disneyland for the day a couple times.
     *I have spend most of my life taking care of people. My sisters when I was         younger, cousins, a great uncle and my grandpa.
     *I love amusement park rides. The scarier the better.
I     *I hate horror or scary movies. They mess with my mind.
     *I played Tennis in 9th and 10th grades.
     *I also played softball for several years and loved it.


   Some of my favorite pictures:








Monday, February 16, 2015

Meet Scott Christensen! Our Northern Utah Parent Advocate

My name is Scott Christensen and I am one of the Northern Utah Parent Advocates for Utah Kids. I have lived in Utah my entire life, and currently Melissa and I live in Washington Terrace. Melissa and I have four children, two of which are special needs. I currently am the Office Manager for State Farm Agent Matt Howard and I love my job(first time in 15 years I can say that). I lived in North Ogden for 8 yrs and then we moved to Sunset and Clearfield until I was 13. My parents built their first home in Clinton when I was 13 and they have been there ever since.
I have just a few hobbies which include camping, fishing, and duck hunting. I have enjoyed being in the outdoors my entire life. Fishing was always the one thing my dad and I found time for, so it’s always special for me, when I can take my boys with me. Here is my oldest son Trevor(he has autism) with his first fish in June of 2014:







I am also a huge Green Bay Packers Fan. I love when the Packers beat the Bears. Nothing gives me more joy in life. I also love when the Yankees lose. Sports are a big part of my life, and my wife hates it J.

I feel so lucky to be a part of Utah Kids, and if I can help in anyway, please let me know. You can email me at scott@utahkidsfoundation.com or scmc0310@gmail.com. My favorite quote is from Wayne Gretzky,” You miss 100% of the shots you don’t take.” I have learned that if you don’t ask or do something, you will always live with what ifs, and that is not a good way to live. Rejection can be hard, but it helps us grow, and so I try to never say no, and just jump into new things.

The hardest thing I have ever done for my special needs kids is to live like we do. I have had many opportunities to take higher paying jobs, but that would mean our son with Microcephaly Josh, would not get the medical coverage he has now. I have had to work in some pretty crappy jobs and that is hard as a husband and provider. Although I love the situation I’m in now, not being able to provide for my family has been hard. Looking back though, Josh has gotten what he needs and so has Trevor and that is all that matters.

Here are 10 little known facts about me:
1-I played one season in Minor League Baseball
2-I received a medal from an Army National Guard officer for supporting her during her time of service
3-I love cheese!! Too much if you ask Melissa
4-I was named General Manager of the Year for Carls Jr in 2004
5-I can’t stand fingernails. I have to keep mine short and trimmed. I never go anywhere without clippers
6-I am very sarcastic. 90% of the time I never mean what I say
7-I hate tomatoes and pineapple. I’ll throw up if I even smell them
8-I am a certified Notary Public
9-I hate heat!! Winter and snow are my favorite things










Sunday, February 1, 2015

Meet Mycandra... our Kid of the Month!

From the begging we knew this pregnancy was a blessing. I had gone through two Prior miscarriages. When we found out that we were pregnant with our Rainbow baby our hearts were filled with both fear and joy. But once I made it to 15 weeks we knew this pregnancy was going to stay. We went in at 20 weeks to do the BIG ultrasound. I remember my husband and I arguing over finding out the sex of the baby. He wanted to know and I wanted a surprise. We already had one of each there was no point in finding out till he or she was born but our plans changed. The ultrasound was going great we didn't realize that the DR saw something abnormal. What should have been a 1 hour visit turned in to 2. She finished with the ultrasound and without a word gave me the Pictures she had taken and walked us into a consultation room. By this time our nerves were at their limit. She sat us down and started to explain what she saw, and that our little one had a problem called SUA (single umbilical artery) and that he or she could have major growth issues along with other problems. At this point my mind changed I had to know the sex of the baby. IT'S A GIRL she said. She scheduled us to come back at 32 weeks to check her growth and see what other birth defects she may have. The wait for that second ultrasound was hard and I continued to have premature labor and noticed I was retaining a lot of amniotic fluid. 32 week came along and we went in with hope things were going to turn out great. At this appointment the specialist preformed the ultrasound herself. She spent 30 mins measuring everything and looking at all her parts. She spent another 30 minutes looking at her stomach and heart. Little did we know these actions would change our whole world. She sat us down again and explained although she was measuring perfect there were some serious issues and that our baby would have to have surgery and be in the NICU for a while after birth. She Explained she had a Duodenal Atresia (a bowel blockage) and that usually babies with this condition not only have other issues like central nervous system disorders and heart problems. But that 45% of babies born with DA have genetic issues Like Trisomy 18 and Trisomy 21. She wanted us to do an amino to test so if that was the case we could make the decision to terminate if we wanted to. We refused we would prepare ourselves for the worst but hope and pray for the best we loved her already and would take what god gave us. She scheduled me for twice a week appointments to monitor her growth and how much fluid I was gaining. With all the amniotic fluid we had to make sure it didn’t get to dangerous levels and that my uterus didn’t become over stretched. At 33 weeks I went into the office for my regular appointment to measure everything. I was at 66cm and normal is 20cm. They rushed me to the University of Utah for an emergency amnio to let out some of that fluid. They pulled out 4 1/2 liters off of me that day and watched me for observation. They also sent my fluid for genetic testing. At this point we truly believed our little girl wasn’t going to make it. But in my heart I held on to that hope she would. At 36 weeks I went into the office with contractions I was dilated to a 2 and they didn’t want my water to break for fear of a cord prolapse. They were getting ready to send me back to the U of U for a C-Section and right before he handed me my paper work to take with me he said. By the way all the genetic testing was normal she definitely has angels looking after her. My mom and I cried we knew that the worst possible outcome wasn’t going to happen, we were so happy. At 6:18pm on June 25 2012 Mycandra Faith Ralphs was born. 5 lbs. 8 .5 oz. and 17 inches long. She was rushed strait to the NICU. Mycandra had her first surgery to repair the blockage at 24 hours old. They also discovered while they were looking at her tummy that she also had Malrotation of the bowels so they removed her appendix and put everything back the best they could. She spent 17 days in the NICU at Primary Children’s Hospital. When we brought her home our lives felt complete she made it despite all odds. At 2 months old she started throwing up again from then on we were back and forth to the hospital and having hospital stay after hospital stay with no answers as to why. Mycandra is 7 months old now and we have been in the hospital for the last 2 weeks finally some answers. She had another blockage due to her bowel folding on her and fusing together along with these things called stricture (a lot of scar tissue blocking the way). She has major constipation but it’s being treated. She is finally eating and she was able to go home before thanksgiving. Through all of this she has tried so hard to keep a smile on her face she is the calmest and happy baby I know. I sit and think how people meet their HEROS through their lives when something is either wrong or going just right. I am lucky I gave birth to mine. All 3 of my kids have saved me in some way but this little girl has taught me so much in the last 4 months I have learned throughout my 26 years. I look forward to watching her grown and learn and I strongly believe she was sent her to bring our family back together to remind us all what love truly is. We continue to fight for her and would love for you to pass her page along the more prayers the better.