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Utah Kids Foundation is a non profit organization with its focus on special needs families. We have the largest online support group for parents of children who live in Utah or are seen at hospitals in Utah. We have a community calendar of all special needs events and so much more! Follow us and see where we might go!
Visit us at www.utahkidsfoundation.com
Tuesday, December 2, 2014
On the Second Day of Giftmas..
On the third day of Giftmas, be sure to make a new comment and add another friend today to be enter for the new daily raffle.
a Rafflecopter giveaway
a Rafflecopter giveaway
Monday, December 1, 2014
The Twelve Days of Giftmas Utah Kids Style!
We are starting our 12 Days of Giftmas for Utah Kids families. We have 12 fun giveaway items to raffle off each day from December 1 - December 12th. We won't disclose the presents ahead of time... they are gifts and will come wrapped and all! Follow the simple steps below. Each day one person will be drawn and announced. Enter daily to win gifts!! IMPORTANT: Make a new comment and add another friend on each subsequent day to be enter for the new daily raffle.
a Rafflecopter giveaway
Sunday, November 30, 2014
Meet KayCee, our December Kid of the month
Meet
Kaycee! She is a beautiful young lady that gives amazing hugs freely! She is a
sweetheart and very easy to be around! KayCee can make her mom smile, and cheer
her up like no one else. KayCee is 10 years old and is in the 5th
grade.
KayCee came to live with her parents when she was 4 weeks old, they were able to adopt her 10 months later. Both of her birth parents have some challenges that have prevented them from raising her. She has been diagnosed with Autism Spectrum Disorder, Fetal Alcohol Syndrome, and severe ADHD. She has brought so much life and joy to her home! She loves to tease and has personality for days! She has an amazing smile. She is the best at making sure everyone around her knows she loves them, and she will tell you all the time. She loves to give hugs, and tease. She has her parents and grandparents wrapped around her little finger.” KayCee’s greatest accomplishment is starting to learn how to read and getting 100% on her spelling tests. She is a very loyal friend, and makes friends easily. When KayCee she plays school, she plays
"mainstream" because that is her favorite part of the day!
Kaycee
loves Curious George, U of U football, NASCAR, animals and dolls. She is full
of life, and is very happy and always has a smile on her face.
Friday, November 7, 2014
Empty Stocking Fund Part II
A few questions have popped up and I am hoping to address the most common questions:
1) Who are the recipients of the Empty Stocking Fund?
Applications were made available to families here in Utah with at least one special needs child. In the process of selecting the families we could confirm assistance to, we had several private sponsors come in. Every family that applied for help will be receiving help.
2) When are gifts and/or donations due?
We would love to accept gifts until Christmas but it isn't practical. We hope to have all donations in hand by December 5, 2014.
3) Can we donate funds so that you might ensure the correct things are purchased?
Absolutely! Donations can be made at http://www.utahkidsfoundation.com/index.php/donation-uc
4) Where can we send gift cards?
They can be mailed to Utah Kids Foundation, 550 North 120 West, Lindon, UT 84042.
5) Is there a suggested amount for gift cards?
We are happy to accept any gift cards. We are hoping to provide each of the 3 families with gift cards to purchase the needed items for Christmas dinner. If you choose to purchase one of these, we ask that those be approximately $50.
6) Where can I drop off items?
We have locations to drop items off at in Ogden, North Salt Lake, South Salt Lake, Foothill, Murray, West Jordan and Lindon. Call Syndi at 801-770-3166 for specific addresses. If you need to ship the items, please send them to Utah Kids Foundation, 550 North 120 West, Lindon, UT 84042.
7) What about the parents?
We are primarily focused on the children, however we will gladly accept items for the parents. Two families have both parents in the home and the other is a single mom. For ideas, please contact our office at 801-770-3166.
8) How do we ensure we are not duplicate purchasing items?
If you plan tograb something, please make a note on our list at https://docs.google.com/document/d/1Ju93-VI0nr--uxYqRyGmPpU7D-DgGtkB18GT0L7TGUQ/edit
Once an item is in hand, please change the status to Done.
If we have not answered your question, please email syndi@utahkidsfoundation.com or melissa@utahkidsfoundation.com
1) Who are the recipients of the Empty Stocking Fund?
Applications were made available to families here in Utah with at least one special needs child. In the process of selecting the families we could confirm assistance to, we had several private sponsors come in. Every family that applied for help will be receiving help.
2) When are gifts and/or donations due?
We would love to accept gifts until Christmas but it isn't practical. We hope to have all donations in hand by December 5, 2014.
3) Can we donate funds so that you might ensure the correct things are purchased?
Absolutely! Donations can be made at http://www.utahkidsfoundation.com/index.php/donation-uc
4) Where can we send gift cards?
They can be mailed to Utah Kids Foundation, 550 North 120 West, Lindon, UT 84042.
5) Is there a suggested amount for gift cards?
We are happy to accept any gift cards. We are hoping to provide each of the 3 families with gift cards to purchase the needed items for Christmas dinner. If you choose to purchase one of these, we ask that those be approximately $50.
6) Where can I drop off items?
We have locations to drop items off at in Ogden, North Salt Lake, South Salt Lake, Foothill, Murray, West Jordan and Lindon. Call Syndi at 801-770-3166 for specific addresses. If you need to ship the items, please send them to Utah Kids Foundation, 550 North 120 West, Lindon, UT 84042.
7) What about the parents?
We are primarily focused on the children, however we will gladly accept items for the parents. Two families have both parents in the home and the other is a single mom. For ideas, please contact our office at 801-770-3166.
8) How do we ensure we are not duplicate purchasing items?
If you plan tograb something, please make a note on our list at https://docs.google.com/document/d/1Ju93-VI0nr--uxYqRyGmPpU7D-DgGtkB18GT0L7TGUQ/edit
Once an item is in hand, please change the status to Done.
If we have not answered your question, please email syndi@utahkidsfoundation.com or melissa@utahkidsfoundation.com
Sunday, November 2, 2014
Our Empty Stocking Fund Wish List
This year, the Utah Kids Foundation has offered assistance to special needs families for Christmas. We had applications for 26 children come in and every child will have a nice Christmas either by the foundation or private sponsors. What an amazing feat for our first year! We do have a wish list of items for the children that will be receiving Christmas from the community of families. We are hoping to not only provide the gifts, but also gift cards for a nice holiday meal. We have one family that is not on here yet so a few items will be added with 2 girls... sizes are coming. We have divided the lists by clothing and all other items.
Cash donations can be made at http://www.utahkidsfoundation.com/index.php/donation-uc.
Drop off locations can be found in Washington Terrace, North Salt Lake, South Salt Lake (I15 convenient location), Murray, West Jordan, Lindon and St George. If these locations do not work for you, please email Syndi at syndi@utahkidsfoundation.com and we can try to arrange pick ups.
All items need to be in no later than December 5th. We ask that items not be pre wrapped due to sensory issues or items that might seem age appropriate but are not the actual functioning level of a child. We can make sure the items get to the family that can most use an item. If you are interested in having a gift wrapping party on Saturday, December 6th, I am arranging a location. Again, any questions can be sent to syndi@utahkidsfoundation.com or my phone 801-362-9725.
Wish List:
Skylanders
MP3 player
Godzilla movie
16 GB Flash Drive
Anything Angry Birds
Lego's
Hot Wheels
Big Stuffed Dog
Anything from the movie Frozen (2 girls have requested)
Anything Dora
Anything Sensory with Lights and Sound
Baby doll Stroller
Elsa Doll
Video Games: Wii, DS, PS3
Board Games
Books Wish List:
Diary of a Wimp Kid
Goosebumps
2nd or 3rd grade level Vampire or Sci Fi (2 children requested)
Manga (Fairy Tale, Lucky)
Teen Sci Fi
1st grade Picture Books
2 year old picture books (2 children)
Kindergarten level picture books
Percy Jackson books (2 children)
Michael Vey books (2 children)
Boy Clothing Wish List:
Kids 10/12 shirts
Kids 15/16 shirts or Men's Small
Men's XL Shirts
Boy 6T Shirts
Boy 5T Shirts
Boy 3-6 month or 6 mo shirts
Boy XL or Men's M Shirts
Boy 10/12 slim pants or adjustable waist
Boy 14/16 slim pants or adjustable waist
Men's 36x30 pants
Boy 7/8 pants
Boy 5T Overalls
Boy 3-6 mo or 6 mo pants
Boy 14/16 pants (no zippers, buttons or snaps)
Men's size 8 snow boots
Men's size 9 snow boots
Boy size 12 church shoes
Boy ankle socks size 4 shoe (not toddler)
Boy Crew Socks size 7 shoe (not toddler)
Winter Gloves for a teen Boy
Boys 14/16 Boxers
Boy 3-6 mo or 6 mo warm pajamas
Men's XL winter coat
Girls Clothing Wish List:
Girl 5T Shirts
Girl 3T Shirts ( 2 children)
Girl 14/16 or Woman Small Shirts (longer length)
Girl XL or Woman Small shirts
Girl 5T Pants
Girl 3T Pants ( 2 children)
Girl 14/16 or Woman S pants
Girl 14/16 Petite pants
Girl XL or Woman Small Warm Pajamas
Other items:
Wrapping Paper
Gift Bags
Tissue Paper
Shirt boxes
Amazon Gift Cards
Walmart Gift Cards
Grocery Store Gift Cards
Gas Station Gift Cards
Target Gift Cards
Christmas Candy
Please share our page and #EmptyStockingFund
Saturday, November 1, 2014
Meet Carter - our Kid of the Month
On October 25, 2007 the
Nelson’s welcomed twins Carter and Hunter Nelson to the family at 8:55 a.m., 11
weeks early. Carter weighed in at 2 pounds 13 ounces and Hunter weighed in at 2
pounds 15 ounces. They were born early due to a phenomenon called
twin-to-twin transfusion, where one twin gives the other twin all the blood and
doesn’t get any back. Carter was the donor in their case, while Hunter
was the recipient. It was also determined that Carter suffered from Stage 3 and
Stage 4 brain bleeds which could potentially cause Cerebral Palsy. Only
time would tell though what the damage would do to his body.
Carter was born at Dixie Regional Medical Center in
St. George, Utah and spent 5 days there before it was apparent that he would
need more serious medical intervention. On November 1, 2007 Carter was
life flighted to Primary Children’s Medical Center where it was discovered he
needed immediate life saving bowel surgery. Over the course of the next 7
weeks Carter would stay at Primary’s to grow. During those 7 weeks while at
Primary Children’s he would undergo many tests to make sure he was doing
ok. It was discovered that he had holes in his brain from the brain
bleeds at birth for being so early which could possibly cause Cerebral
Palsy. Both boys came home from the NICU on December 24, 2007. It was the
best Christmas present ever.
Starting February 2008 through September 2008 Carter
had several surgeries trying to give him the best little body he could have to
live the fullest life. One of the
surgeries Carter underwent that year was Cranial surgery. He had a pointy
forehead and it needed to be corrected.
When the doctor got inside they didn’t like the way the actual skull was
formed so instead of just fixing his forehead they actually cut into the skull
and flipped it 180 degrees and then put the plates in. As parents we often joke
that the back of his head is now the front, you can still kind of feel where
the point was. Up until August of 2014 he had not had to have any further
surgeries. He recently just recovered from a hip reconstruction, femur
reduction, adductor release surgery, and 6 weeks in a body cast.
He turned 7 on October 25, 2014. Carter does
have Spastic Quad Cerebral Palsy but is a very happy and social boy. He loves to
EAT all types of food, loves people, the school Bus, books, computers, his
iPad, TV, music, School, church, playing with his brothers, and being tickled. Carter
is the light of our family. His smile and hello’s melt our hearts every time we
walk into a room where he is at.
Sunday, October 26, 2014
Beginner's Guide to Medical Terminology
I have worked in the medical profession for the last 13
years in cancer care and now in mental health.
I also just finished my bachelor’s in Health Information Management and
have had medical terminology up the wazoo.
Here’s a quick intro lesson on medical terminology 101. Medical terminology is based off Latin.
For example…..gastro- means stomach. –Entero means small intestines. –ologist means specialist. When combined, what may look like a really
long word is just simply several shorter latin based words put together. Gastroenterologist is a specialist (-ologist)
who studies the stomach (gastro), and small intestines (-entero). Another example – pulmo means lung. A pulmonologist is a physician who
specializes in treating the lungs. Once
you learn the prefixes, the medical world seems a lot less scary.
abdomin/o abdomen
ad- toward or in the direction
of
aden/o gland
-algia, -dynia pain and
suffering
ana- excessive
angi/o blood
vessel
ankyl- crooked, bent, or stiff
anter/o front or before
appendic/o appendix
arteri/o artery
arthr/o joint
ather/o plaque or fatty substance
burs/o bursa
carcin/o cancerous
cardi/o heart
caud/o tail or lower part of the
body
-centesis a surgical puncture to remove fluid
cephal/o head
chondr/o cartilage
-clasis to break
cost/o rib
crani/o skull
-crine to secrete
cyan/o blue
cyt/o cell
dermat/o skin
-desis surgical fixation of bone
or joint
dia- through, across
dors/o back of
the body
dys- bad, difficult, or painful
-ectomy surgical removal
endo- within
enter/o small intestine
epi- upon, above
erythr/o red
eti- cause
eu- good, normal, well, or easy
exo- out of
-gen producing
-gram a record writing
-graphy the process of recording
hepat/o liver
hist/o tissue
home/o same
So there are a ton more words we could go over, but let’s
take a few of these and combine them into words you already know. Hyster- means uterus. –ectomy means surgical removal. Hysterectomy means surgical removal of the
uterus. Appendic- means appendix. –ectomy means surgical removal. Appendictomy means surgical removal of the
appendix. Cardio- means heart. –Gram means a record writing. A cardiogram is just a recording of what your
heart is doing.
Here are some links to the most commonly used medical terms
and their definitions:
A quiz on medical terminology: http://www.funtrivia.com/playquiz/quiz4508452c228.html
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