Our little Lukas is a 5 year old bundle of energy. He has primary Microcephaly due to a recessive gene both parents must be carriers of. Micro-what-a-ly? Microcephaly, micro for small; cephaly for brain. Luke's brain slowed down during gestation, and has completely stopped growing. His head measures less than half the circumference of his peers. He also has an agenesis of the corpum callosum, and a portion of his cerebellum that didn't form properly. His other diagnoses include: seizure disorder, MPA, FTT (gj Tube fed), growth hormone deficiency (pituitary dwarfism), sensory issues, impulse control disorder, "off the charts" ADHD. He is suspected, but not confirmed to have: meckels diverticulum, selective mutism, OCD, pica, gastroparesis/ psuedo obstruction, vomitous continuous (ha-ha, I made that one up, because I swear it's a real thing. ) He likes watermelon, carrots water and broccoli, (pretty much the foods with no calories) and only eats by mouth a few times a month. He loves cars and trains and would probably watch them all day if we let him. He finds creative ways of communicating to us all the time. He is in alternative kindergarten this year. His teacher says he is the class clown, and they can't get him to stop swatting at all of the female teacher's butts. You may have seen us at primaries or at various IHC Instacares before. He is the bright blue-eyed dwarf that that likes to take his clothes off and go streaking. That's our Luke, we love the craziness and joy he blesses our home with.
Love sent from,
Jaime and Jeff LeFevre
What a sweet and adorable little boy! My friend had a daughter with microcephaly. I will be telling her about this page because I am sure she'd love the support from this group!
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