My daughter is Zoey, she will be turning 3 this december and she was originally diagnosed with infantile Spasms. She was diagnosed at 6 months old with no know reason. After struggling through lots of different medications. ACTH helped her stop the spasms. A few months later Zoey started to do more spasm looking things again so after more tests, blood work, EEG and MRI we were told that her brain has epileptic tendencies, but doesn't have seizures. We are still having trouble understanding this because of all the videos and opinions from other families, she looks likes she is having seizures.
After doing a bit of research and a a false positive diagnosis of Rett syndrome, we decided we wanted to dig more into what Rett Syndrome was and get her re-tested. That is where we are now, waiting for February to come to meet with a genetic counselor and doing more DNA testing to give us an official yes or no to Retts. The unknown is difficult, but my little Zoey bug is a pretty happy kid. She loves anything to do with water and climbing. Not a good mix, so she keeps us on our toes!
To get all of zoeys story you can go to:
www.babyzoeystory.blogspot.com
I hope all goes well with little Zoey shes in my prayers often xx Mavis
ReplyDeleteShe is darling! Good luck and I hope you get the answers you need! :)
ReplyDeleteHow cute!
ReplyDeleteHow precious!
ReplyDeleteThank you everyone! She is a sweetheart. Love that we get to see these cute kids every month.
ReplyDeleteShe's a doll & I hope you get the answers you deserve!
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