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Konner is a 5 year old little boy who is full of spark and life. He doesn't let anything stop him or get in his way. He doesn't find his disability to be a blockage in the road but a journey of life. He has gone through 4 years of being poked and prodded by doctors to get a diagnosis. May 1, 2014, we found out Konner has a rare condition called Hereditary Spastic Paraplegia SPG4 mutation. It is the most common form of HSP but Konner's is considered complicated due to him having partial complex seizures, sensory processing disorder which might also be related to his condition, and possibly Aspberger's. This condition is usually found in adults and is not commonly found in children or children have been misdiagnosed with Cerebral Palsy that do have this condition. He has been in a wheelchair for 2 1/2 years and just received his first powerchair in January due to his condition progressing. We moved here to Utah 2 1/2 years ago from Wyoming in order to be closer to the doctors at Primary's as we were traveling here so much. Since moving here, our appointments have been spread out and now that we have a diagnosis, we don't need to see as many doctors. They aren't certain how to help him with this progress. We will be seeing an HSP specialist in October at the Scottish Rite of Dallas because of how complex Konner is , a lot of doctors have referred to this doctor for answers and to enroll Konner in a study.
His favorite activities are the movies and horseback riding in Layton. He received a Make A Wish trip in January to go to Disney World to meet Mickey. His dream job would be a fireman like his second cousin, who is his hero! This journey we have been on the last 5 years has been a trialing journey but one of the best as well. Thorough Konner we have learned patience and understanding. We have also grown closer to God to help us through this journey and bring us the answers to help Konner . For more information on Konner's journey and store, follow him on Facebook.
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